This waiting game is hard!

      Well, this week I went back to my Cardiologist for a follow up, and he said that he is pretty sure my heart is healthy, which is great! We still don't know what's happening though, so he ordered the next round of tests. I had more blood work and a chest x-ray, which both came back normal, this Wednesday I'll be having an ultrasound of the blood vessels in my legs, and next Wednesday I'll have a pulmonary function test done.

     At this past visit my amazing Nana came with me to be my support, advocate, and extra set of ears. She more than rose to the occasion and in her unique way, called the doctor out on his lack of answers for us thus far. She and I both were underwhelmed with his bedside manner and his ability to answer questions, and when I asked a question about whether we had ruled out a specific condition and got the answer "probably", we both decided it was time to change doctors. So, after this next round of tests, I'll be seeing a new cardiologist who will hopefully be more ready to answer my questions and walk me through this anxious time.

   My biggest issue with my previous cardiologist was that he didn't approach my concerns with any sense of urgency. Yes, I know I'm not dying right this second, but my condition, whatever it is, is still urgent to me. If my experience with doctors not diagnosing my celiacs for 9 months taught me anything, it's that I have to be my own advocate. And the fact is, I don't currently have enough energy to be the mother and wife that I want to be, so this is very urgent, and I will stand up for myself and find a doctor who will treat it as such. Hopefully we'll get some answers over these next few weeks, and hopefully this next doctor will be better suited to answer my questions.

     Thank you so much to my family and friends who have continually offered support and love, and thank you, thank you, thank you to my amazing Nana! I love her so much, and she's helping me through another scary time, and just having her with me makes me feel better. I'll keep you all updated as I know more!